Pain On The Go

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I am usually pretty excited about traveling out of town to visit relatives as I don't really get to go out much.  I've enjoyed the road trips; mainly the conversations and laughter with my husband and children.  Yet, recently, having to sit in the car for more than an hour is like taking a first class trip to hell.  My poor body is crippled with pain for nearly the entire trip and I develop a really bad case of leg, ankle and foot edema that lasts for at least a week.  We left Virginia for New York early Friday morning around 2:30 a.m.  I was already so exhausted from packing and preparing for the trip.  My back, shoulders and feet were screaming at me and felt like 
they were on fire.  In no way was I looking forward to sitting in the same position for eight hours.  Needless to say, the ride was excruciating.  At one point I just burst into tears.  Mind numbing pain was coursing throughout my entire body and I just couldn't take it anymore.  It felt like fire was shooting from my shoulders down my arms and like knives were stabbing me in my joints.  I kept taking my Inflamma-Tone and Relax-Tone to calm my burning nerves and muscles, but without my heating pad, a warm bath or my bed I was doomed.  At around 6 a.m. sleep finally took over but it wasn't restful or pain-free.  We would have gotten to my in-laws sooner if it wasn't for the snow in Pennsylvania and the slow trucks.  I couldn't get out of the car fast enough when we pulled up in the driveway.  Thank goodness that was over!  The rest of the day my ankles and feet were swelling and getting more and more painful to stand on.  My shoulders were burning with pain.  I didn't get a good night's rest as my dog barked almost all night long.  By Saturday morning I could barely put any weight on my feet without my ankles feeling like they had been broken.  Walking was as if I was treading on broken glass.  My body was beaten and my emotional state was just about to crack.  All I ever want to do is to be able to enjoy anything that I am doing. It was apparent that enjoyment was going to be very limited over the next two days.  I only got about four hours of sleep last night as my dog had become sick with diarrhea and was up most of the night tending to him.  The pain is a little bit better, as long as I stay off of my feet as much as possible.  My mood has been on the gloomy side more so today.  Day after day of pain and lack of sleep has that affect on people.  Tonight we are all going out for dinner.  I hope that I will be able to enjoy that at least before we leave early tomorrow morning to head back home.  It will be raining and snowing in Virginia which means that more pain will be waiting for me when I get home.  So not looking forward to being in the car for so long again but I am going to try my best to enjoy the time that I do have with my family.






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Pound Cake Contest: I Made The Finals!

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My entry made it to the final round of the Heaven's Gate Pound Cake Shoppe's You Be The Chef Contest!  The flavor I chose to be their limited edition pound cake was inspired by the Samoas Girl Scout Cookie - Chocolate Caramel Coconut.  If I win, my troop (Troop 519 of the Girl Scouts of the Commonwealth of Virginia) will get $100!  I need everyone to vote for my flavor!!
Voting starts today and ends March 30th at midnight.  Voters can vote once a day. So keep reminding and sharing the contest with your friends and family until the last minute!
Visit the Heaven's Gate Catering and Pound Cake & Specialty Food Shoppe websites.  If you live in the Stafford/Fredericksburg/Spotsylvania areas of Virginia give them a call for your next event and support your local business!

Telephone:
540-659-9687
Mailing Address:
P.O. Box 2791
Stafford, Virginia 22555
E-Mail:

Thank you for supporting me and my Girl Scouts!  To learn more about the Girl Scouts in Central Virginia, visit www.comgirlscouts.org.  They are also on Facebook and Twitter!

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My First Interview - Listen Now!

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Today, I was blessed with the opportunity to speak on the Positive Experience Show hosted by Jospeh Aquilino, a.k.a. Joey Giggles!  Joey is an advocate for RSD/CRPS and other chronic pain conditions.  The topic of today's show was to discuss the experiences of living with chronic pain/illness.  In my case it was migraine/chronic migraine, fibroymalgia, depression and anxeity.  It was a pretty awesome experience and look forward to possibly being a guest again in the future.

Take a listen to the show now!  And make sure to listen to all of the shows on the Joey Giggles Channel on Blog Talk Radio.


Listen to internet radio with Joeygiggles on Blog Talk Radio

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Positive Experience Show with Jaime Michele Sanders | Blog Talk Radio

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I will be interviewed today on the Positive Experience Show hosted by Joey Giggles on Blog Talk Radio!  We will be discussing the experiences of living with chronic living and how it has personally affected my life as an individual, wife, mother and friend.  I truly hope you will call in to listen and to share!

 Please come join us...(310) 982-4253 is the call in number for everyone including the guest...You can embed the show on your website, you can listen directly from your website... you can download the show to your computers, you can listen to an archive of the show on the http://blogtalkradio.com/joeygiggles site and you can share the channel on any social network.
If you like to join us on chat during the show you must sign up and register for the main site at http://blogtalkradio.com/.

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The Quiet One: A Story About Selective Mutism

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Around 2 months old - 2002
My youngest son was always quite different from my other children.  He was the smallest and most clingy.  He could never be still and loved to eat.  He cried the most and disliked being anywhere without me.  But most of all, he never really cared to be around anybody that wasn't me.  He would throw a fit whenever anyone would try to hold him.  He wouldn't look at anyone either, his face turned in the opposite direction.  At the time I thought that it was just him being obscenely attached to his mother.  His father wouldn't even do most of the time.  At home, he was most comfortable and at ease.  He played happily with his siblings and was full of expression.  But as soon as I (or both myself and my husband) would leave him he would cry until I returned.  I felt like I couldn't do anything because he needed me so much.  It seemed to be a very long phase of separation anxiety.  By the time he was around 2 he became better just being with his father.  That I was grateful for.  When I was finally successful at weaning him off the breast at 16 months his attachment started to lessen, although not by much.

He still didn't care to be around other people very much.  At daycare, he did okay.  He wasn't very enthusiastic about playing with the other children and remained very quiet.  The only time he showed excitement was when either myself or my husband came to pick him up.  His shyness didn't give me cause for concern.  I, myself, am pretty quiet in public situations so I didn't fret over it.  By the time he started Pre-K his behavior around others became more noticeable to me.  He seemed scared of the other kids in his class and never spoke with them.  He played quietly and did his work in silence.  I volunteered as much as I could in his class just to make him feel more comfortable.  Sometimes, he would cry so hard when I tried to leave that I just stayed an hour or two longer to ease his anxieties.  His class happened to be an inclusion class where children with learning and behavioral disabilities were a part of it.  I think that the children with the behavioral problems frightened him.  He would look at them as if to say, "What is wrong with you?".  He had two teachers in that class, Mrs. Harris and a special education teacher.  I'm still very close friends with Mrs. Harris.  She did all she possibly could to make that first year of school for him as comfortable as possible.  I could never thank her enough for that.

When it was time for Kindergarten, I enrolled him in the same school as his brother and sister.  I figured that going to the same school as his siblings with make him feel more comfortable.  My other son was pretty shy too and finally opened up around the first grade so I was thinking that his younger brother would follow suit.  That wasn't the case and hasn't been.  Each year he remained quiet.  He didn't seem to make any friends or talk to any of the other children.  Participating in class wasn't something that he did voluntarily.  His teachers would always say how polite and well mannered he was and that when he did speak it was so soft that it was almost inaudible.  His shyness affected his work somewhat as he approached the third grade.  His teacher, who is also a neighbor of mine, was becoming concerned about his unresponsiveness.  He wouldn't answer any questions and would just stare at her.  She was unable to decipher if he understood the material that she was teaching.  At home, he would sometimes do that to me and his father and he pretty much always did that when we went out.  He would rely on his siblings or his parents to answer for him because we knew that he wasn't comfortable around strangers or new environments.  But when I had to go into the school for a meeting with his teacher, the vice principal and the speech language pathologist I was scared and nervous.  Everyone thought that he might have a speech problem but I assured them that he spoke very well at home.  He failed the test the SLP gave him but it was just in situations where he was uncomfortable that he shut down.  So, we agreed that it most likely wasn't that.  I made an appointment with his pediatrician to discuss what's been going on at school and told them that I'll know where to go from there.
8th Birthday! - 2010

I was devastated.  No mother wants for their child to have any difficulties in life and he's such a sweet boy.  That made all of it harder to deal with.  His pediatrician recommended seeing a therapist that specializes with children.  Now, I see a therapist for my depression and anxiety.  To know that I had to take my child to one didn't sit comfortably with me at first.  I couldn't take the guilt knowing if my mental illness has anything to do with what's going on with him.  After his first session, his therapist diagnosed him with having Selective Mutism.  Selective Mutism is a rare anxiety disorder.  According to the Selective Mutism Foundation:
Selective Mutism is an anxiety disorder characterized by not speaking outside the home to select individuals or in select settings, which continues for more than 1 month. Most commonly found in children, they understand spoken language and have the ability to speak but often are reluctance to speak in some settings, have a phobia of speaking and fear of people. Selective Mutism is related to severe anxiety, shyness, and social anxiety.

The first symptoms of Selective Mutism are usually noticeable between the ages of 1 to 3 years. However, it is usually not recognized until the child begins school and is requested to respond verbally and/or interact in social situations, including pre-school, elementary school and community environments. Sometimes, even then, the child is viewed as shy and it is assumed that the shyness is temporary and will be outgrown. The cause has not been established. However, recent research suggests the possibility of genetic influence or vulnerability for Selective Mutism.

For those experiencing severe forms of Selective Mutism, immediate intervention is advisable because the symptoms can increase. Generally speaking, a younger child has a good chance of recovering, if treated, because of the shorter interval of time where no verbalization has occurred in school or in other major settings. Selective Mutism is not a speech disorder nor is it Autism. 
 I dove head first into finding out everything I could about it.  I felt relieved that there was an explanation for his extreme shyness and that with cognitive behavioral therapy targeted towards children with anxiety disorders, he will gradually get better.  It was also good that I got him properly diagnosed.  He was eight years old at the time and the older he gets the harder it is to treat.  I had another meeting with his teacher, SLP and vice principal and told them about his diagnosis and treatment plan.  I gave them information about it and recommendations from his therapist on how to approach him in the classroom.  He started to improve in class thanks to his therapy.  He's eleven now and in the fifth grade.  He still needs tutoring in math and reading but overall he's doing well.  He hasn't needed therapy in some time but after a talk with him today, I'm going to get him back into it.  He still has a lot of anxiety about new situations and having conversations with his peers.  It breaks my heart when he tells me he hasn't any friends.  I want the best for him and that includes having the proper tools to work through his anxiety.

Being someone who suffers from two mental illnesses is extremely challenging.  Having a child with one is even harder.  I want to protect him and keep him close but that will only hurt him.  I feel responsible for his anxiety disorder and harbor extreme amounts of guilt.  In order to make him feel okay about his feelings I have frequent talks with him about my own anxiety and how it makes me feel.  Opening up about how it affects me allows him to be open with me.  Doing this lets me know where he stands in all of this and helps me decide what needs to be done as far as seeking treatment.  Like all parents, I just want what's best for him.  Even though he's getting bigger and will be starting middle school in the fall, he'll always be my special little guy.  He and my other children are always my biggest priority and I will do everything in my power to ensure as normal and comfortable a life as possible for all of them.


Me and my special guy! - 2010
With his brother on the first day of school.
11 years old - September 2013


Definition of Selective Mutism provided by Selective Mutism Foundation.  Learn more about Selective Mutism on their website:

www.selectivemutismfoundation.org

Other Selective Mutism organizations:







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Bitter

Posted by Unknown |

Today has not been a very positive day.  I needed to express how my chronic pain, depression and anxiety have left me feeling angry, bitter and frustrated.  With so many reoccurring negative experiences when it comes to feeling pain, be it physical or emotional, finding that light at the end of the tunnel is like trying to find a needle in a haystack.






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